Sickle Cell Disease Association of America

Founded in 1972, the Sickle Cell Disease Association of America provides a national voice for people affected by sickle cell disease and sickle cell trait. It works to address issues surrounding the conditions and improve health, life, and services for individuals, families, and communities. The organization advocates with state and federal legislators and regulators to advance sickle cell disease policies. It also raises awareness about clinical trial participation through the SCD C.A.R.E.S. Consortium and offers community health worker training. Education is another part of its work, including virtual programs focused on sickle cell care. More than 50 member organizations span 31 states, and the association provides a way to find a member organization by state.