Family connections
Groups, virtual events, regional meet-ups, and an annual conference
Chromosome 18 Registry and Research Society
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About Chromosome 18 Registry and Research Society
Family support, education, and research are the core services of this organization. It connects families affected by chromosome 18 conditions through social media groups, virtual events, regional meet-ups, and an annual family conference. Membership is free. Resources include condition-specific guides, symptom and treatment information, medical resources, and educational materials in PDF and video formats for families at different life stages and healthcare professionals. The organization also shares research advancements and medical information to help families make informed decisions. Its global network includes more than 6,000 families. Based in San Antonio, it serves families and others affected by chromosome 18 conditions worldwide.
Disclosure: Profile information has been compiled from publicly available sources and has not yet been verified by the business.
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Services & specialities
Highlights
Free resources
Guides, medical information, and educational materials
Research and education
Shares chromosome 18 research advancements and medical information
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