Sickle Cell Education
Information about sickle cell disease and sickle cell trait.
Sickle Cell Disease Association of Illinois
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About Sickle Cell Disease Association of Illinois
Provides information about sickle cell disease and sickle cell trait, along with support and resources for medical care and disease management. The organization offers patient education, screenings, care coordination, and wraparound assistance through its Cell and Gene Therapy Grant program, including childcare and parking reimbursement for eligible appointments. Support groups meet through Zoom, GroupMe, and occasional in-person gatherings, with options for men, caregivers, and general participants. Community outreach programs educate the public and advocate for improved healthcare and services for people with sickle cell disease. SCDAI also hosts fundraising events, an annual toy drive, and a holiday celebration for youth with sickle cell disease. It serves Illinois from Chicago.
Disclosure: Profile information has been compiled from publicly available sources and has not yet been verified by the business.
Representative photos. Illustrative images for this category, not photos of Sickle Cell Disease Association of Illinois and not provided by the business.
At a glance
- Service area
- Illinois
- Team
- Led by Executive Director TaLana Hughes and staffed by community health workers and coordinators.
- Founded
- 1971
- Founded as the Midwest Association for Sickle Cell Anemia (MASCA).
- Founding member of the Sickle Cell Disease Association of America.
- Has hosted an annual Toy Drive and Holiday Celebration since 1972.
- Has hosted an annual Walk-Jog-Bike-A-Thon on Chicago's lakefront trail since 1974.
- Has sponsored Bright Horizons Summer Camp since 1983.
From www.scdaicares.com, checked 22 Oct 2026. Only what the business states on its own website.
Services
- Cell & Gene Therapy Grants & Support Wraparound support for people who qualify for CGT.
- Support Groups For men, caregivers, and everyone; held through Zoom, GroupMe, and occasional in-person meetups.
- State Advocacy Day Annual advocacy event in Springfield; 2025 event was canceled.
- Hemoglobinopathy screeningsFree Provided in partnership with the UIC Sickle Cell Center’s Outreach Nurse.
As listed by Sickle Cell Disease Association of Illinois. Prices as published by the business and may change.
Services & specialities
Highlights
Patient Support
Resources include care coordination, screenings, and support groups.
Community Outreach
Education and advocacy programs serve people with sickle cell disease.
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