Sickle Cell Thalassemia Patients Network

Based in Brooklyn, Sickle Cell Thalassemia Patients Network is a volunteer, not-for-profit community health organization focused on inherited blood disorders. It began in 1985 as an adult and parent support group and incorporated in 1992 to serve the wider community. The network provides education, advocacy, care coordination, support interactions, and referrals to services for individuals and families living with sickle cell disease, thalassemia, and other hemoglobin disorders. Support is available through contact with a Community Health Worker. The organization also offers ways for people to volunteer and contribute to its work. Its programs address the effects these conditions can have on families and communities, including physical, psychosocial, academic, economic, and political impacts.