DIPG research
Funds clinical trials and research initiatives focused on DIPG.
Storm the Heavens
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About Storm the Heavens
The foundation raises funds for DIPG research and shares information about the disease through awareness efforts, stories, and community events. Its funding has supported the DMG-ACT clinical trial, research at the Children's Cancer Therapy Development Institute, and a Stanford CAR-T cell trial. The organization was inspired by Philomena "Bean" Stendardo, who died from DIPG in 2017. It also brings together supporters through prayers, family stories, and events such as Bean's Beach Ball, which raises funds for research. Its focus is pediatric diffuse midline glioma, or DIPG, and efforts to expand research and treatment opportunities. The foundation is based in Philadelphia.
Disclosure: Profile information has been compiled from publicly available sources and has not yet been verified by the business.
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Services & specialities
Highlights
Disease awareness
Shares information and stories about pediatric DIPG.
Community events
Brings supporters together to raise funds for research.
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