Familial Dysautonomia Foundation, Inc.

The foundation funds research and medical care for people affected by familial dysautonomia, a rare genetic disorder. It also operates social service programs, provides public education, and advocates for affected individuals and families. Support is focused on FD treatment and research, including funding work that led to discovery of the FD gene and establishing treatment centers dedicated to FD care. The foundation hosts FD Day, an annual virtual event bringing together families, scientists, clinicians, and industry partners. It also offers an equipment rentals program and shares news and events related to FD care and research. Its work serves people affected by or at risk for familial dysautonomia. The foundation is based in New York City.